mississippi river road path, south/north
53 degrees/84% humidity
shorts again! too warm!
A beautiful morning. Sunny. Warm. Not too windy. Ran towards the falls instead of downtown. Tried to hang onto some thoughts about my vision diagnosis from 2016. What did I feel when the doctor told me I was losing my central vision? Relief, mostly. Finally I knew what was wrong with me. It wasn’t something I was making up and it wasn’t neurological (my big fear). Now that I knew I could deal with it. This relief lasted for a few months and then the doubt crept in as I wondered if my vision was really as bad as the doctor said it was or if my easy acceptance of the diagnosis was too easy. Then, I discovered that what I had been diagnosed with (Best’s disease) was not actually what I had. Instead, I had a rarer, more vague form of cone dystrophy–pinpointing the exact disease might not be possible, wouldn’t change anything and would involve annoying, costly test. I had a great thought about this just as I was starting my run, but then forgot it. I should have stopped to speak it into my phone. Something about knowing and not knowing, embracing the uncertainty of never really knowing and accepting that knowing exactly what my vision problem is won’t make a difference in my treatment (there is none) or the speed at which my central vision deteriorates. And, in fact, knowing is not possible. This not knowing is not ignorance–more like never knowing enough, having perpetually incomplete knowledge, the impossibility of KNOWING.
As I was trying to think about what word to use for this phenomenon, I remembered “bewilderment”–first read in Fanny Howe’s great essay of the same name. Here are a few other sources that I bookmarked way back in August about bewilderment (confusion, uncertain, unknowing, wonder):
And here’s a source I found today: Unknowing Lyric
While looking through my old journal, I found this beautiful poem: